A little something about me

Friday, 31 January 2014

Day 203.

It's been a while.
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Hello there guys and girls. Apologies for my lack of blogging. It's most certainly been a while. Longer than I intended anyway.

I will soon be starting a new direction to my blogging. I feel inspired to discuss my epilepsy more. Really give people an insight in to what I suffer with and how I live with it. However, there are more pressing issues at hand.

Sadly, on Tuesday evening I was text by my best friend, whilst I was in London, that his dad had been diagnosed with Leukaemia. A couple of hours after that I received a phone call and was told that sadly he had passed away. Within a few hours a family's life had gone from total shock to utter devastation. Reg was my 'father in law' without the marriage for around 3 years. I had gotten to know him well and I loved him like a second dad. The shock was beyond anything I can describe. It was so unexpected that I didn't even know where to start when working out what had happened. My best friend in the whole world had lost his dad. Had lost the man he turned to for advice and lost the man who helped shape him in to who he was today. Speaking to him on the phone was the most horrific call I'd had to take. I broke down immediately and it felt like I had been punched in the stomach. It is something I never want to feel again. After my initial shock and managing to calm myself down to avoid a fit, I realised that my friend needed me. My friend who had lost his dad was now on his own and I needed to be with him. I got back to him as soon as I could and here I am now. Still at his, ready to be there for him whenever he needs me.

On Sunday we travel to Spain for the funeral which is happening in the week. It has been a blur this last week as everything has been arranged. After my friend went to see his brothers in Norfolk I have stayed at his, done his washing, done his housework. Just so it's one less thing for him to worry about. I can't do much for him but what I can do is be there. That is my only intention. 

A brief blog yet one just for you to know why I haven't posted for a little while.

Rest in peace Reg. You'll be dearly missed.

Hannah xox

Monday, 20 January 2014

Day 192.

Some times things take you by surprise and you realise how amazing people are.
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On posting my piece re my epilepsy diagnosis I have been inundated with support from so many different people.

To start, a few thank yous to some truly amazing people. 

Firstly, one of my best friends, Nick. Not only has he spent years putting up with my episodes, he's also been a massive comfort to me when times have been difficult. For that, I'd like to thank him for everything. He was also the first person to share my blog with his friends and from there it sparked a massive chain of events. 

Heidi. My best friend. After only knowing her a few months I know she is a friend I will never be losing. Not only is she a beaut but she was also there for me at my appointment and has stood by me throughout the time I've known her. Love her to pieces.

Michelle. A lovely lady I have met a few years ago and who recently contacted me after reading my blog. A fellow sufferer she knows her stuff and has been on hand to offer advice and answer any questions I've had.

Team Epilepsy. What absolute legends. After messaging them asking if they would be willing to share my post in hope of helping others they did! Thank you to them for being a great resource and such a supportive team!

Leon Legge. A Gillingham FC defender who was kind enough to repost and share my blog on Twitter to all his followers. He was also kind enough to speak to me about his experience with it. Very grateful to him.

There have been lots of other people who have been amazing but the above have been the most prominent of all. Thank you to everyone for everything.

Since I was diagnosed I realised how much stronger my support network had become. The people I loved came out in force and showed me how amazing they really are. We all knew there was something not quite right with me but finally the relief from all has been incredible. The relief that we all know what it is and how we can overcome it.

I must admit, the 2 days after my diagnosis were tough. Harder than I ever thought they would be. I was very low. I couldn't comprehend my life sentence because that's what it felt like. Now the initial shock has subsided, I am seeing life how it should be and I am very optimistic for the future.

Positive changes are ahead and I am so grateful to know I have some awesome people around me.

Thank you to everyone who has been there for me and continues to be. You are all magnificent.

Hannah xox



Wednesday, 15 January 2014

Day 187.

I'd like to share something with you. Something for you all to read. Something to maybe inspire, encourage or educate you. Something for someone, somewhere.
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Today was the kind of day where you are overwhelmed with relief but, at the same time, shattered by an almost life changing realisation. Today I was given news of which I'd known for years but not been 100% sure of. Today I found out what was about to catapult my world in to a new dimension.

It was time for my hospital appointment. I've never been one for the doctors or hospitals. Of course, I admire the incredible work they do and will forever be grateful to every person who, in this sector, has helped me throughout my life. I don't particularly like going to see these people because usually they bring with them not so great news. My appointment today was one I had been waiting for my whole adult life. At 11 years old I went through this and at 24 it's all to happen again.

I can remember the first time it happened to me. I was standing in the kitchen talking to my mum and suddenly it hit. This huge wave of numbness. I felt as though I was out of my body looking in at the situation that played out. I felt out of control. I couldn't feel my hands, my head was hazy and no matter how much I held on to my head, it didn't stop. A few minutes later and this sensation had disappeared to nowhere. I felt tired, heavy, panicky. I asked my mum what was wrong with me. She didn't understand what I was trying to explain. I couldn't explain it. I didn't have the words to fully explain to someone what it was like. I still don't. 

After being taken to the doctors I was referred to a neurologist where I was then taken away for an EEG. At such a young age it was a scary procedure. A nervous, shy young girl connected to machines, wires falling lazily from her head whilst flashing lights irritated her eyes. It didn't make me have an 'episode' though and it worried me. What if they couldn't find out what was wrong with me? What if I was just abnormal? The test results came back and they were certain I had epilepsy. That scary word no one particularly ever wants to hear. That horrible, terrifying realisation that something is wrong. In your head. No one wants that.

13 years later and I pluck the courage up to return to my doctor to finally put an end to years of what I'd describe as suffering. Hand on heart my 'episodes' can be some of the scariest moments I've ever experienced. 

I went to see a neurologist today who's overly laid back and almost accusing nature took me by surprise. I expected him to be friendlier, less aggressive, less blunt. I sat down and he merely said 'so what's wrong with you?' In my head I was screaming 'WELL THAT'S FOR YOU TO TELL ME ISN'T IT?!' The panic set in and I knew, as I got hotter and hotter, that an 'episode' was on it's way. I covered it up well. That had become a common practice for me nowadays. I blag my way through them. Not well mind. I tried as hard as I could to explain what happened. I was struggling as much as I had done when I was 11. The words were still muddled. Just pointless words falling from my lips without being completely coherent. I panicked more and more. He told me it was stress. He said I must be having a really stressful time to which I replied 'maybe now and again but not solidly for 13 years.' He understood me from then. I found the word he was desperate to hear. Vacant. With a click of his fingers he looked at me and nodded. That was what he wanted. From there he told me that I did, indeed have epilepsy. Temporal Lobe Epilepsy to be precise. (After a mass text to friend's and family my iPhone corrected it to Temporal Love Epilepsy and I quite like it). Just click the link if you want to know more about it.

On leaving the consultation room I was on cloud 9. He'd asked if I wanted to have tests to which I agreed quickly. As much as they scared me, I wanted full, complete, concrete evidence that this was the condition I was going to be battling for years to come. He had diagnosed me within 5 minutes and was more concerned with why I wasn't aware that I have been noted as a sufferer of epilepsy for so long. It was always explained to me as something I would grow out of, something hormonal. Little did I know. So for all these years I have described my condition as 'like Epilepsy', I can now be bold and say 'I suffer with Epilepsy'. 

From leaving the room I could no longer drive, I could no longer be home alone and doing simple tasks such as having a shower or cooking. I had to be with someone all the time for tasks that once seemed so simple. The main reason for this is, because with this type of epilepsy, I could have full on seizures (Grand Mal)at any time which could result in me drowning if I fall unconscious in the shower. It's really scary.

I want to be fully honest with you all about this because it is something that has been part of me for over half of my existence on this beautiful planet.

My cloud 9 moment only lasted until I got home. I was back in my 'space', my things scattered on the floor of my bedroom, my letters strewn over the bed where I had been hunting for my appointment slip earlier in the day. Everything was as it was when I'd left but in some ways everything had changed. From leaving my house to returning I had become, almost, a different person.

I have been promoting the positive mind set for some time now and this 'revelation' had come as a shock (despite me knowing, in some way, already). Back in my room, I sat. I tried to watch vlogs of my favourite beauty/fashion bloggers, I tried to read, I flicked through my fashion magazines. Nothing was shaking the dread in the pit of my stomach. For some reason I was worried people would treat me differently. I was scared I'd be labelled. 'Hannah who can't keep her head together'. 

For those of you who don't know me well my memory is usually something of amusement. My terrible memory has gotten me in trouble before but it's never been something I could do anything about. At least now I know it's part of my symptoms, it's all joined in, along with my constant tiredness. Everything had fallen in to place yet I was still scared.

The fear was irrational really. Nothing dramatic had happened. I have been living with this for so long and now I finally had a name. The name I had been waiting for. Praying for. Hoping for. Now it had a name it scared me more. Usually it's the things that aren't familiar that scare us more. Now I was staring at it straight in the eye. I knew it's name. 

I am still trying to be positive. Not only was my car on it's last legs anyway, I also loved getting the train. Now I won't have to pay tax, insurance or for petrol, I will have more money for shoes. And lots of them.

If you or someone you know has anything similar and you'd like to know more about my condition, my symptoms or anything related to this blog please feel free to contact me. Your comments are always loved and welcomed on my blog or you can find me on Twitter and we can have a chinwag.

Today has re-enforced my determination to get the most out of life though. This condition will not be my defining feature. I will not let it take over my life in the same way I haven't let it for these last 13 years. I may be afraid, I may be worrying but ultimately I have something to offer this world and I'm sure as hell going to give it.

Hannah xox


To everyone who knows me personally, I'd really appreciate it if you could pay attention to what I next write. By knowing some of this you may be able to help me if I have an 'episode' in your company.

If I do have an 'episode' when I am with you I really urge you not to panic. Please don't flap around worrying about calling an ambulance. I will be fine. If my 'episode' lasts hours then perhaps think about getting me help but if I seem to slip away, having you panicking around me is only going to make it last longer. I tend to either hold my head or put my hand to my head as it either starts or comes to an end. I zone out. Become unresponsive and appear dazed. I slip off in to my own little world where everything that is real becomes hard to believe. All I ask of you is to please be calm, keep talking to me and remember that I know what is best for me. Generally if I speak when I am feeling unwell it is a load of rubbish. Gobbledegook. Jibberish. So don't take offense. I appreciate everyone that has put up with me when I've been having an 'episode' in the past. You have all been amazing, I just hope I can still count on you now to ensure I don't end up in any serious trouble or in a terrible situation. All I ask is that you keep an eye on me.

Monday, 13 January 2014

Day 185.

Ultimately it's about being yourself but there is a little part of all of us that wants to be like someone else.
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Feelings seem to be a tricky subject with some of the menfolk we have wandering across this beautiful planet. They seem to be this elusive taboo that we haven't quite cracked. Don't get me wrong, there are plenty of ladybirds not admitting their true feelings too. Out of fear mainly. Fear that we'll be judged.

I like a man in control of his feelings. One that isn't shy of saying how he feels, one that isn't scared of opening up and being honest. For some menfolk, this seems to be a really difficult concept to grasp. Some guys, rather than be straight with us, use 'feelings' to trap us in to uncertainty. In times gone by there was a guy, who clearly didn't know me that well. Rather than just saying he wanted a one night stand, he lead me on completely. Now if he had admitted his feelings and told me the truth I wouldn't have been so pissed off with him. Not in the fact that it was a one night stand (that turned out to be the most terrible shag of my life) I was more annoyed that he felt he had to bull his way to getting it. Why pretend feelings? What does that actually accomplish?

Forcing feelings is another no-go area. Time and time again I have tried to convince myself in to having feelings for people that really, I didn't. All those hours wasted, over thinking and trying to force the notion that this was good, didn't work. I ended up irritated by the other person. Not that they'd done anything wrong, of course but the fact that they were pushing their feelings on me when I didn't even know what mine were.

A good friend said he didn't want me to think he was weird if he told me how he felt. Is that a standard male fear? He was too worried I would think he was 'soft' if he admitted things to me. There it was. The male fear had materialised itself in a single text message. A message that would inspire me to write about feelings. Is it really a soppy thing to do when admitting your feelings? Is it a general no-no for a fella to admit how he feels? Do men not feel anything? (Other than women's arses in bars?)

I think menfolk need a shake up. A bash around the head. Whatever you feel is appropriate really. They need to realise that girls like feelings. We relish them. We over think them. As much as we say we hate the games, in some way we all love the chase but ultimately, let's have the honest feelings laid out before you string us along. Only after one thing, great, let us know. Really like us, let us know. Let's leave all the teasing and stuff for the playground. We're all grown ups here. Well, most of us. A girl wants to know how a guy feels. Maybe there are ways in which you can tell us without crushing our hearts. You know? If you're not happy with her, perhaps let her down gently but be honest...admit how you feel.

Life is all about feelings. We rely on our feelings to let us know when something is a good or bad idea. If you struggle to admit those you'll end up very alone. Admitting to how we feel can sometimes be really tough. We worry what others will think, whether they'll reciprocate, whether you'll look a fool. Who cares? If we are scared to admit those feelings why are we having them at all? What's the use in holding on to something that you'll never express? Be angry, be upset, be happy. Be whatever you have to be, but let your feelings out!

So, a little note to all the menfolk: 

'Let's get this straight boys. Us ladybirds like an emotional fella. I'm not talking about crying all the live long day, writing poetry and declaring your undying love for us. I'm talking about being honest, admitting how you're feeling and being considerate of our feelings. We're all sentient beings and as much as you want to believe you're this tough, 'give-a-shit' kinda person...you're really not. You will cry over things, you will laugh at random moments and you will fall for someone. That can't be stopped but there's no shame in it at all. So, remember, the next time you're interested in a girl, just tell her. If you only want one thing, let her know. Don't be using these phoney feelings just to get in to her pants because I can promise you, she will be telling all her friends what an idiot you are and you know how much us girls like to gossip. That truth will be shared around pretty quickly.'

I love feelings. I love how they can consume us. How they can overwhelm us, take our breath away and shock us to the core. They are a magical, invisible power that only individually we can understand. There's no use in shying away from them. We must accept them, embrace them and allow them to empower us. If you're feeling sad or angry. Why? Channel your feelings in to something positive. If you're feeling happy or enlightened. Why? Harness that phenomenal power you are feeling and allow it to enter all aspects of life.

I'm feeling pretty amazing right now. What about you?

Hannah xox

Sunday, 12 January 2014

Day 184.

It was like she'd woken up. Properly. From the longest sleep she'd ever known. She'd finally become the person she'd always dreamed of. Not some imitation copy. She was finally awake. Wide eyes.
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Yesterday brought with it amazing memories. For me, a memory is something I seem to lack yet I knew that the feelings I experienced would be something I would never lose. 

Along with my sisters and their fellas we ventured up to London. The one city I feel really at home in. After years of trips to Ealing to see my grandparents I was always excited to go back up there and be amongst the bustling crowds and noisy streets. I loved it. We were on our way to Brixton to see The 1975. A band I had loved ever since my friend played me 'Chocolate' in the car one summer's day. It made me happy, it reminded me of her and I couldn't be more excited to hear it live.

Whilst waiting for my older sister and her partner, myself, my other sister and her mister, wandered around Leicester Square taking in all the sights and smells that beautiful place had to offer. With the bells ringing, the chatter of tourists and the sounds of street performers I knew I was in for a good night. We finally met up, had dinner and headed somewhere to get a drink.

The tube was always good fun. So many lines weaving their way around the city. Brixton came all too soon and then came the chilly walk to the Brixton 02 Academy. An imposing building, rising up amongst the run down shops and dull lights. The buzz was phenomenal. We were late, worrying our unreserved seating would be swamped with groups of excitable fans, leaving us separated. Luckily, that was not the case. As we made our way up we sat in the middle, looking down across a sea of heads. The stage was in perfect view.

The warm up acts were good. More so the first than the second. I wasn't really up for seeing an Avril Lavigne tribute act. And then they came on.

The first thing I noticed, or should have noticed, before going in was the signs mentioning the strobe lighting that would be used throughout. Not good news for an epileptic, or possible epileptic. I didn't care though, it would all be worth the mini seizures...and it was. The bright lights flooded the stage, the smoke machine engulfing the front row in a fog of anticipation. 

It occurred to me throughout the show how much I missed seeing live music. After becoming somewhat of a recluse from the music scene it confirmed to me that I was certainly missing out. I also saw that I was one of the only people not on my phone throughout the whole show. Now, as much as I love social media and such, I was so happy to not have my phone with me. Just for those few short hours, I was cut off from the world completely and left to enjoy the melodic sweetness The 1975 were providing. All I could see were arms in the air, holding phones. Taking pictures, recording videos. The amount of selfies going on around me was phenomenal. We decided to join in and, after my sister's flash had blinded us all so we looked stoned in every photo, we gave up. 

The change in feeling from filming an entire gig and simply watching an entire gig are worlds apart. Not having my phone and actually being part of the show was far greater than having a blurred picture of a strobe filled stage to look back on.

Whilst I stood there, listening, taking in the atmosphere, I felt a wave of emotion. Not only was I with my two sisters, I was also amongst a genuinely lovely audience who were all there solely to have a good time. I felt as though my life had clicked in to place. I was resolute that writing was the one thing I wanted to be doing. I knew I had uni but I also knew that I had bigger fish to fry. A back up plan was never a bad thing. I needed to reach even further and become everything I had imagined when I was a little girl. I needed to work for the things I love and become successful in everything I do. I was determined. I am determined.

That one gig was added to the list of 'life changers'. Those times in life where I feel complete. Those times where I realise my full potential and look towards achieving. I felt completely and utterly ready for life.

As I watch my dad, in his Crocs, picking up dog crap, I knew I wanted more from life than I ever had before.

Hannah xox

Wednesday, 8 January 2014

Day 180.

Primarni is a killer.
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After spending the morning in the library with two friends, attempting to complete work none of us were motivated for I decided it was time I bought new shoes. And a new top. And new leggings. Oh and a necklace. I was a poor, unfortunate girl with the ability to resist a bargain in the same way John Terry was able to keep his dick in his pants. 

On my drive in to uni with my good friend Stephend, we began discussing, as we always seem to do, the trials and tribulations of getting laid. Stephend, a lot like me, agreed that she was trying to live her life through me. Involving random hotel trips and 'try before you buy' fucks. She is the dominating influence on me right about now, especially when it comes to dating and sex. She's always encouraging me to go and try things, go out even when I'm feeling a little nervous and always, without fail, up for getting me to road test things she wishes she'd done. It's hilarious and mostly offers me the encouragement to get out and get on.

Today our conversation turned to sex. "Sometimes you just need a good fuck. Not all the flowery bits." She's right. Sometimes it is all you want. It doesn't need to be candles, affirmations of love and gentle caressing. Sometimes it needs to be rough and ready. Location seems to play a huge part in this sex fiasco. Benches, cars, front gardens, trampolines and swimming pools...there didn't seem to be anywhere we weren't particularly afraid of trying. Or at least, where she wants me to try. 

Recently, I had been propositioned to 'go somewhere' to indulge in one of life's greatest pleasures. It had been loosely planned. No real structure. Just the fact that he wanted to do it and do it pretty soon. Don't get me wrong, there were moments where I thought it would be a great idea. I, someone who enjoys sex, was not fazed by the actual act, it was more what my reputation would suffer from it. Going to a hotel, one night of, hopefully, good sex only to return to normal the next day with the possible chance of awkwardness. Despite, trying to be a 'give a shit about what people think' kind of girl, I did worry...only slightly. The main fear was that I would resemble some form of prostitute as, in some ways, the bloke would actually be paying for sex. He would be exchanging money to in turn, get his end away. Does this now mean that Travelodge would be my pimp? It was an awkward situation.

So, other than my worry of being seen as a prostitute, I was then left with the worry that I, at times, can be a little 'noisy' shall we say. I like to see it as an encouraging boost for the man. 'Well done fella! You're doing okay. Have a squeak for appreciation.' Well, perhaps not a squeak. I then worry that, if this sex is apparently going to be 'good' that I will be left in the uncomfortable position of doing the walk of shame through the lobby to be greeted by giggles from other customers or the staff. Stephend had a solution to this problem. "You need one of those ball gag things. Although, you need to be able to breathe and they can make you dribble quite a bit." Well, that gives you a little insight in to how Stephend's sex life goes...It was a valid suggestion but perhaps not one I would be indulging in just yet. 

Who knows whether this mysterious shag will come about? But, if truth be told, perhaps it all seems a little bit too problematic. If something like that is going to happen I don't want it to be scheduled. I don't particularly want my sex life to be routined. Surely it should be spontaneous and fun, not pressured and possibly uncomfortable? It made me question him slightly too. It made me wonder why he was so keen. Did he just need a good fuck without all the flowery bits? 

Hannah xox

Monday, 6 January 2014

Day 178.

She wasn't looking forward to it at all but she knew she had no real choice.
*
As the drinks went down I realised it could only end one way. Those cheeky red Bulmers becoming my down fall faster than I could imagine. Every time. Every single time. Leaning against the bar, trying to get her attention, pointing at the glass and grinning. Again and again. Dancing like a mad woman, roping in friends and family. Zorba the Greek. I'd catch his eye. 

From nothing to something I knew I had gone too far but didn't stop. A cuddle, a stroke of the back, a hand on his knee. I was falling faster and faster with no way of stopping. I stopped the cab early, just so I could walk with him. Just me and him. Just us. I felt the flutter. A pang in my chest I had to get rid of and quickly. This wasn't how it was meant to be. I didn't even know if I really wanted it.

Home. Time to be quiet. Lying there, feeling him breathe next to me. Strong. My head was spinning but I knew it was going to happen. I kissed him. My heart pounding, my body aching for him. He kissed me. It all happened so quickly. My squeals of delight having to be smothered before the awkward tap on the door telling me to be quiet. I needed him. I wanted him. 

Woke up. He'd gone. Now was the time for regret to join me in bed. Why did I do this to myself? The decision was hard enough anyway let alone with me complicating it all. Deep down I knew I couldn't be anymore. Not right now and I wasn't sure if I ever could. Yet he gave me those fireworks I'd dreamt of.

Hannah xox

Sunday, 5 January 2014

Day 177.

This is blog was brought to you by my good friend the hangover.
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Well, I say hangover. I don't think I'm sober yet.

This was a wake up call for me. After wandering in to my parents room last night, sleepwalking, I made the decision that alcohol was not my friend whatsoever. I had definitely gone too far. Again. The sleepwalking I couldn't do much about. That goes hand in hand with my sleep talking yet I knew the demon drink hadn't helped with it at all. I can't look my parents in the eye this morning.

It was a great night. Good people, good friends and family, all coming together for a surprise birthday party that had taken an entire day and shut pub to organise. She was delighted, as I hoped she would be. It was fun.

I realised a week ago that my drinking had become another problem to add to this long list of boo boos I keep making. I am relentlessly making a fool of myself and I can't seem to shake the idea of why. I'm pretty sure I know why but making that initial admittance was harder than it seemed.

My world seems very confused right now. Not only am I struggling with planning on what I should be doing, I am also torn between who I should be doing. Classy as ever you'll agree. 

I have a very good friend. He's amazing in every single way yet I can't help but wonder why I do it to myself. He makes me laugh, he's sweet and he doesn't take my crap yet I can't seem to go any further than that. I hit this brick wall that instantly says 'nope. You can't'. I have no valid reason not to go any further apart from this massive panic. A panic that isn't justified in any sense. I'm panicking that I'll lose the freedom I have craved for so long. I think that's the biggest giveaway that maybe, right now, I'm not ready.

Dating seems a bit of a minefield too. After seeing someone a couple of times, I thought, this was good. I thought I had overcome my fear of letting go and accepting the fact that someone would be right for me. I'd met the friends, we spoke daily, I was all good to go apart from that niggle, yet again. The insane thought that, perhaps, I wasn't ready. Surely I would be ready soon? This is longest I have ever been single since I first joined the ridiculous world of love and dating. Nearly 6 months and despite the offers I couldn't help but ask myself why not? Was I really that fearful of letting go that I'd never be able to?

It shouldn't be rushed, I know that. After jumping from relationship to relationship, it probably was the best plan that I just stop for a while. Although, as time goes on and I date even more, I worry what my cut off point is. How far can I go without really admitting how I feel? How far can we go before it's too far?

Friends with benefits isn't something I ever planned on having. For me, it proves too much of an effort. Even more so than being in a relationship. We have to hold ourselves back so we don't get too attached but not too far or the other person will think we aren't interested. All I know is that I can't do that to myself. I get far too caught up in the moment. I say things, do things that hint that I want more yet when it comes to it, I just can't commit. 

I dread being alone but at the same time, I dread being in another relationship that doesn't give me everything I want. I guess, there's no way of telling from the beginning and we have to go with how we feel but I'm too scared to even try.

Hannah xox

I'm sorry I threw 2 glasses of water over you but that was ridiculous.

Friday, 3 January 2014

Day 175.

I eat kiwis with the skin on. I worry constantly. I go through ballet pumps like there's no tomorrow. I hide away in my room. I often wonder what could of happened. My make up always smudges. I love Wallace and Gromit. I listen to my head too much. I'm scared of being alone. I love going to the zoo. I wish I was braver. I criticize myself all the time. I always thought I'd have achieved more by now. I love charity shops. I want to be successful. But I don't know in what. I prefer showers than baths. I am terrified of the dark. To the point of crying. I don't know why. I'm just me.
*
I've been looking back over the last few years. Mainly 2013. That was a strange one. A year of somewhat dramatic change.

This year begins with expectations, worries and motivation. It also begins with a hospital appointment. On the 15th I am lucky enough to go back in to hospital for more tests on my head. For those of you unaware of my situation, allow me to explain. 

Since the age of 10 I have suffered with what the doctors have assumed is a type of epilepsy. I was tested at a young age and they decided that these 'seizures' were a hormonal balance that would level out as I got older. Sadly, it hasn't. My 'seizures' have become a lot more frequent. Whilst driving, talking to friends, watching a film, taking a walk. They can happen at any time for any amount of reasons. I may not fall to the floor and 'fit' as you may assume, I actually zone out entirely. Like an out of body experience. My head feels tight, I tend to feel very sleepy and have been known to fall in to unconsciousness. It's scary, I can tell you that. I panic and get very upset especially when it is a big one. Some last seconds, others last hours. It all depends.

On the 15th, I am hoping that they finally give me more tests and confirm what is wrong with me. I worry constantly that I am going to fall ill again, I get nervous about going to new places in case I have an attack. It's eating away at my life and it's about time it all stopped. 

I'm worried about going. What if they tell me there's nothing they can do? What if they say there's nothing wrong with me? How can I keep living like this? I'm not scared of being diagnosed at all. In fact, I want a name for it. I want to be able to relax knowing that there is something and I can fix it. I'm scared of having nothing. 14 years I have suffered with this and it's been 14 years too long.

Other than worrying about my hospital appointment, I have been trying to sort my life out. I've been feeling distant from it all. I started uni with all the excitement and passion as I should have done but that has slowly disappeared. I don't know why but I'm just not enjoying it. I feel like I'm being left behind in classes. Everyone else seems to be interested in what they're being told but all I do is disappear inside my head, wondering what to write about, making up little poems and being completely distracted. I look at the work we are given and sigh, knowing that ultimately I am writing about something that no longer interests me. I must keep going though. I can't back out now. I don't want to. I guess I just need to find what lead me to it in the first place.

2013 was a bizarre year if truth be told. I began the year blogging and promoting sex toys, I became a carer again and then I became a barmaid. I recently received a message from some random man on the dating site. (Not that I've paid any interest in it lately). His comment to me was something of 'You're 24 and only work in a bar. Wow what a waste of life. Definitely not interested.' It was quite funny really considering his job is a chess teacher. He's really making a difference in the word. I thought it was strange. Why would you bother sending that to someone in the first place? I apologise my lifestyle doesn't please you, however, why should I? Sadly, I engaged in conversation with this moron purely out of frustration. He said that I was judging him for his occupation (despite him being the one that did so to me) and that I am stuck up because I told him I thought he was a prat. I felt justified in my opinion.

My single status has remained in tact and for now, I still have no enthusiasm for that to change. Although...

A friend of mine was speaking to me last night as I was having one of my 'moments'. The times where I flail around moaning about what I am and am not doing with my life. He told me there were 3 things we need to be happy. 1)Social happiness (including love life) 2)Working happiness 3)Financial happiness.

I thought over each of these, wondering which was the one I was most unhappy with. Sadly, none of them sprung to mind. I am happy with my job. Simple. My finances are fine. I don't need a lot of money, I work and get a student loan so, for now, that's fine. Socially? I don't feel to hard done by. My closest friends may live far away but that doesn't stop me from speaking to them. I have friends I go out with and speak to frequently. Yet I don't have a man. Is this what's missing from my life? Realistically, no. I don't feel that a partner is going to complete me. If anything, and from experience, they hold me back. I didn't go to uni to study drama because of one ex and look at me now. Granted, it wasn't entirely his fault. I should have been strong enough to say 'this is what I want, I'm going.' I didn't. I will live with that regret forever. 

Out of all of them I suppose the social happiness will be the easiest one to tackle first. I have ideas in the pipeline that, I hope, will set me on another more exciting path but, for now, I think I'm okay. I just need to know what my purpose is. Why am I here? What can I do for people?

One of life's questions that may remain unanswered. I'm going to give finding it out a good go though.

Hannah xox

Wednesday, 1 January 2014

Day 173.

Everything was renewed. It was all another fresh start for everyone. Another year, another month, another day. We count down the minutes until the new year comes. We count down the days until Christmas. We count down the weeks until our holidays. We count down the months until our birthdays. 
All we are ever doing is counting down.
*

New Years Eve was wonderful. I was surrounded by wonderful people. Just wonderful. It was simple but it was perfection. I wanted everyone close to me. I wanted those I care about to be near by and all, apart from my family and a select few others, were.

For the first time in my life I did something brave. Not heroic in any sense but, for me, brave. I went to the cinema alone. I have never done it before and, although, it may seem like a strange thing to be pleased about, I am ever so proud of myself. Being someone who is of a nervous disposition, awkward, shy at times, it was a challenge for me. I have only just managed to walk in to a bar on my own rather than panicking that no one was there. I sat, alone, and had one of the greatest times. Not only was a watching a rather beautiful film, I was also alone. All by myself (there's a song there somewhere). I had plucked up enough courage to walk in, buy a ticket and sit alone amongst groups of teenagers and couples. I thought I'd feel uncomfortable, as though people were watching me. 'Look at her, the poor thing. Maybe she's been stood up.' I didn't feel the glare of people's eyes. I didn't feel judged by the girl at the till. I was perfectly content being alone. 

The film, I must say, was marvelous and you should definitely see it. The Secret Life of Walter Mitty. As I described to a friend, it was funny, beautiful and captivating. I knew it was the kind of thing I needed to see. It was my kind of film. As much as I enjoy my kids films, my comedies, I really am a plain, old, 'give me inspiration film bitch' kind of girl. I like the films that leave me with something to aim for. Something to be passionate about. Reawaken something inside me that dwindles now and then. This was the perfect film for the new year. It was my first 2014 wake up call.

Ultimately, it's about how a man started living rather than going along with his life as it was. He knew he needed to do something and now he had a reason to. It made me think, as most things do. My brain is a sponge for inspiration. I find inspiration in most elements of life. I like it that way. It made me think about my life. It made me worry that I could be like him (assuming the sex change goes well). It made me worry that I could be like him and end up alone, in a job without having actually lived. It's time for me to change my future again.

University was the beginning and now I need to continue it. I need to keep playing out all the different scenarios, work out what it is I actually want. I did have some form of epiphany the other day but perhaps not worth mentioning here if I'm honest. It is something for me to mull over, however. There were a few things I decided. I worked out. Finally.

I need to live. I need to live more. The rut is becomingly increasingly harder to get out of and I need to make changes and decisions that, although I will be scared, will improve my life beyond my wildest dreams. I've seen others do it and now it's my turn. I am getting too old for this crap. I need to make my life now.

I hope with the new year you are inspired. Inspired to change, inspired to grow, to love, to look, to listen. Inspired to live. I certainly am.

What I have discovered this year so far:
  • I don't appreciate my toast being buttered for me,
  • I want to work harder on my blog,
  • I need to live more,
  • I need to love more,
  • I need to stop being afraid.
Hannah xox